Text: BORO73 £5 to 70070

GNR Team 2015

JPC Respite Village

As a baby, the future was uncertain for James Connuaghton:: Fifteen years on, he's doing well - and inspiring an ambitious care plan

Parents of a teenager with cerebral palsy say his life journey has inspired them to sell their home and set up a respite centre in his name.

When he was nine months old, doctors struggled to even diagnose just what was wrong with James Connaughton.

They were living in Ingleby Barwick at the time and shared James’ story in the Gazette to raise awareness - even though the future seemed uncertain.

Dad Paul recalls: “We were told he was brain dead, he’d be a vegetable all his life, he’d never walk or talk. But we wanted to prove them wrong.”

A diagnosis of hypertonic cerebral palsy with global development delay was eventually secured and James - now 15 - has gone on to show real improvements and become much more socially aware.

Despite this, though, nagging away at Paul and wife Julie have been worries about what will happen to James in the future - especially when they saw TV coverage of the Winterbourne Care Home scandal in Gloucestershire, where some carers abused disabled patients.

They wanted something much better for James and youngsters like him - and that’s where their respite centre plan comes in.

 

Julie Connaughton with daughter Abigail ,7, and her son James in 2001
Julie Connaughton with daughter Abigail ,7, and her son James in 2001

 

Having received no respite care at all during James’ first 10 years, and still being reluctant to leave him overnight with anyone other than exclusive family members, they believe a specialist centre will offer children and parents - in short, families like them - the valuable time and space many need.

They now hope to sell their home in Maltby and move onto a site they’ve identified nearStokesley where the centre will be built.

But with an initial funding target set at £1.4m, they know it won’t be easy.

Paul, 50, said: “For us it had been our worst nightmare, not knowing how James will live when we are gone.

“After nearly a year of brainstorming and speaking to other parents, we decided this would appear to be our ideal option and enable us to leave a legacy behind.

“We wanted James and children like him to have a quality of life filled with happiness and security. What is also unique about the centre is it will allow parents to base themselves on the same site, while the child or adult is being taken care of.”

 

 

Paul, a former police officer who is now regional manager for car care firm Supagard, said the Percy Hedley School in Newcastle, which specialises in children with cerebral palsy and where James travels to and from each day, is supporting the idea and offering help and advice.

If all goes well, Paul and Julie, who runs the Gossip fashion lifestyle magazine, hope to get the JP (James Paul) Connaughton Respite Village up and running within two years. Initially, around six residential places and four carers’ rooms would be available. Facilities could include riding lessons, an outdoor play area, a small petting farm, trampolines and numerous indoor activities - all based around conductive education involving physiotherapy, occupational therapy and speech and language therapy. The well-being of parents would also be catered for, with stress management and counselling services.

But now the search is on for supporters to help back the dream - financially and otherwise.

Paul said: “Some people might think we’re mad but what’s the worst that can happen? If it doesn’t work out, at least we can look James in the eyes and tell him ‘son, we tried’. But we’re not thinking like that - we’re determined to make this happen. We can’t afford to let this fail for James and others like him.”

For more information, email pd.connaughton@btinternet.com or julieconnaughton1@gmail.com. And for more about the scheme, visitwww.gofundme.com/jamesrespitecentre

JCP Respite Village

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Event Properties

Event Date 29-05-2016 9:30 am
Registered 2
Cut off date 27-05-2016 6:00 pm
Attachment FB-Cover-The-Tour.jpg
Route Plan - 14 March 2016.pdf
Route in Middlesbrough - Sheet 1 - 14 March 2016.pdf
Route in Middlesbrough - Sheet 2 - 14 March 2016.pdf
Sponsorship form JPC.pdf
Sponsorship form JPC2.pdf
tourguide.pdf
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Rhys 2 Disney

To be losing your sight must be frightening enough - but when you’re seven-years-old, it’s almost unimaginable.

Yet that’s the prospect facing brave Rhys Clapton, whose sight and mobility are both deteriorating because of a rare genetic condition.

Rhys, of Guisborough, has been diagnosed with Spinocerebellar Ataxia Type 7 - a genetic defect which degenerates the brain’s coordination centre, the cerebellum.

Doctors fear he may lose his sight within a year. He also suffers increasingly from balance problems - “the wobbles” he calls them - which are worsening too.

Now supporters are raising funds to get Rhys and his family to Disneyland Paris for a dream holiday while he can enjoy it properly.

Rhys’ diagnosis last December followed increasing concerns about his vision and lack of balance. Once a normal lad who loved to play football and ride his bike, life has taken a cruel turn for the WWE wrestling-loving youngster who, despite his problems, stays happy and keeps smiling.

But mum Jeanette and dad Richard, a mechanical fitter at the Boulby Potash Mine, admit the diagnosis came as a body blow.

Part-time cleaner Jeanette, 39, said: “It was absolutely devastating, especially because it was just before Christmas.

“The doctor had only ever seen three people with it. And the younger you are when you get it, the worse it is.

“We’re hoping he doesn’t get worse, but we can see as the days go by how little things are going.

“It’s not just his eyes, it’s his balance too. Now it’s a waiting game now to see what happens.”

Rhys, who lives at home with his parents, brother Lucas, 10, and sister Ellissa, four, used to attend Belmont Primary School. But with his eyesight failing, he now attends Sunnyside Academy in Coulby Newham, where there is specialist provision for his needs.

He’s eight next month and with such a lot to cope with, you could forgive him for wanting the world for his birthday - but that’s not Rhys’ style.

Jeanette said: “He’s a very modest boy. You can give him an Argos or Toys ‘R Us catalogue and he won’t ask for anything - he just says ‘it’s OK, I’ve got enough toys’.”

But one thing the family would love to accumulate are happy family memories.

Jeanette said: “We normally go to places like a Haven park, which Rhys loves, but Disney would be amazing - a dream come true.

“We were told in December to make as many memories as we can this year for him to see, and that’s what we’ll try and do.

“He’s such a happy little boy. I don’t think he understands the situation fully and I don’t want to go into detail.”

Rhys 2 Disney

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Event Date 29-05-2016 9:30 am
Event End Date 29-05-2016 6:00 pm
Registered 9
Cut off date 27-05-2016 6:00 pm
Attachment FB-Cover-The-Tour.jpg
Route Plan - 14 March 2016.pdf
Route in Middlesbrough - Sheet 1 - 14 March 2016.pdf
Route in Middlesbrough - Sheet 2 - 14 March 2016.pdf
Sponsorship form R2D 2.pdf
Sponsorship form R2D.pdf
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tourguide.pdf
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MTPF - The Tour of Teesside

Middlesbrough and Teesside Philanthropic Foundation

The Foundation is a registered charity, set up by Teessiders for Teessiders. It provides a framework for individuals and businesses to join together and make Teesside a better place in which to live, work and do business.

We have raised over £1.7 million in the past four years – Our purpose is simply to raise and allocate funds to assist community groups within Teesside.

We have three specific goals:
1. To make a real difference to the lives of local people.
2. To show the 400,000+ people who live in our area that there is a group of businesses and individuals who want to make a difference.
3. To let the outside world know that we live in a special place where community spirit and a sense of fairness are important.

Our Projects

School Hardship Fund

The Philanthropic Foundation is especially proud to have improved the lives of underprivileged local children. Over the last 12 months we’ve donated £12,000 to local primary schools so that they can support the most needy pupils and families in their care. We gave one Stockton school enough money to buy bunk beds for one of their poorest families, allowing kids of very different ages to sleep on their own for the first time. Another local school was able to take pupils on a day-trip to Saltburn, allowing some of the pupils to paddle in the sea for the first time, despite living only a few miles from the coast. Your support can help us continue to support Teesside’s poorest children.

Nominate a Teesside Hero

The Philanthropic Foundation is determined to shout about our local community champions, the unsung heroes who do lots of work in the community without fan-fare or financial reward. Our monthly Teesside Heroes Awards are all about recognising those community superstars, whilst helping the Foundation distribute much-needed funds to truly worthwhile causes across the area. Each Teesside Hero receives £1,000 for a local cause of their choice – plus a gleaming trophy and meal for two at a local restaurant.

Wish Sport Campaign

For a fourth successive year, the Foundation is funding the Teesside’s Gazette’s annual Wish Sport campaign, giving away thousands of pounds to not-for-profit sports groups across the area. Thanks to the fantastic generosity of our patrons and all those who’ve helped us raise funds, we’ve again made a £30,000 pot available to share between dozens of groups.

Middlesbrough & Teesside Sporting Academy

We are proud to announce we will shortly be launching our latest exciting project, Middlesbrough & Teesside Sports Academy. This scheme derives from our football initiative for those who had suffered homelessness or were in recovery from addiction. Having made such a positive impact on people’s lives through the football project, the Sports Academy is our next steps to do more of the same – only bigger and better. Working closely with existing services, the Sports Academy will utilise a wide range of sports and activities to help vulnerable Teessiders to turn their lives around and build a better future.

Our Events Include:

The Big Teesside Sleepout

We have now held six Sleepout events, with are growing each time! Our participants give up their beds and home comforts for the night, and sleep rough outside Middlesbrough College. Over £79,000 has been raised to date with all money raised being used to help local homeless initiatives and stock food banks.

CEO Sleepout

Our sister charity ‘CEO Sleepout’ was set up to help fight homelessness and poverty. Our fight is funded with money raised by executives who sleep outdoors for one night to raise sponsorship from their business contacts and friends. We hold events across the UK and are recruiting people now. For more information visit www.ceosleepout.com 

Yorkshire 3 Peaks Challenge

The Yorkshire 3 Peaks is a MUST DO for any aspiring walker, the route takes in the stunning peaks of Ingleborough, Pen Y Ghent and Whernside over 24.5 miles whilst passing the stunning viaduct at Ribblehead.  The event is taking place on Saturday 11th June 2016 - Interested in joining us? For more information on the challenge or to sign up online, just visit www.kutaoutdoors.co.uk/charity-pages/philanthropic-foundation. There is a registration fee of £25 and we ask you to raise £150 in sponsorship. 

Great North Run

The Great North Run is the world’s biggest half marathon. The Foundation has guaranteed places available for the race, which takes place on Sunday 11th September 2016. Those who sign up to raise money for Foundation will not only secure their place but also receive a running vest and useful training tips.  There is a registration fee of £50 and we ask you to raise £250 in sponsorship.

For more information on our events please This email address is being protected from spambots. You need JavaScript enabled to view it. or call 01642 686018.

MTPF

Thank you for nominating Middlesbrough and Teesside Philanthropic Foundation as your chosen charity.

All the information required for the event will be emailed to you upon registration.

Please print out your receipt and bring it with you on the day of the event, we need it for our Safety Marshals to Check people In / Out and ensures everyone is accounted for on the day.

Event Properties

Event Date 29-05-2016 9:30 am
Event End Date 29-05-2016 6:00 pm
Registered 3
Cut off date 27-05-2016 6:00 pm
Attachment FB-Cover-The-Tour.jpg
MTPF - Sponsor Form.pdf
Route Plan - 14 March 2016.pdf
Route in Middlesbrough - Sheet 1 - 14 March 2016.pdf
Route in Middlesbrough - Sheet 2 - 14 March 2016.pdf
TTOT-Logo.jpg
tourguide.pdf
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Remembering Rebecca

 

The charity Remembering Rebecca was set up after our daughter Rebecca Sands sadly died at the age of 21 months.

Rebecca had a rare brain condition called lissencephaly and she was given only 2 years to live. Rebecca was very different to other children. She was unable to communicate, feed and had problems with her sight. It became very clear that as family, to get Rebecca everything that she needed would be a fight so we decided to fundraise to provide Rebecca with an adapted car seat, specialist toys and also to create a sensory room. With help of family and friends we raised an amazing £20,000- which certainly ensured that she had the best possible life even though it was going to be short. 

Shortly after Rebecca died we decided that we wanted to put our fundraising skills into helping other families so the charity Remembering Rebecca was created. Yellow being the colour – as that was the colour Rebecca could see and a balloon as the logo to symbolise Rebecca flying high in heaven.

So what do we do ……..

We fund equipment for local children with brain related conditions. The main requests we get are for adapted bikes, mainly for children with cerebral palsy. These bikes are in the region of £2,000 each but give the child the freedom and ability to be able to experience bike riding.

We also supply a lot of ppod chairs which are chairs that offer comfort and support for children- similar to a bean bag but with a £800 price tag attached

Recently we started the creating memories project which focuses on providing activities and days out for families and for siblings of children who are ill or disabled. This year we have offered pizza making parties, pamper parties, mascot at the boro game. Respite holidays at a haven caravan.

Our charity is run by 6 volunteers – so all the money that is raised goes directly to the children and families. We don’t have any big businesses to back us or corporate sponsors, but what we do have is a huge group of supporters and families that we have helped who want to make a difference to the lives of others.

Visit our website: http://remembering-rebecca.co.uk/ or our GoFundMe Page: https://www.gofundme.com/gyktu87w

 

 

Remembering Rebecca

Thank you for nominating Remembering Rebecca as your chosen charity.

All the information required for the event will be emailed to you upon registration.

Event Properties

Event Date 29-05-2016 9:30 am
Event End Date 29-05-2016 6:00 pm
Registered 14
Cut off date 27-05-2016 6:00 pm
Attachment Sponsor Form 2015.pdf
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MS Society

There are over 300 MS Society branches run by volunteers working alongside local staff.

The services they offer include:

  • emotional and practical support
  • financial help
  • information events
  • social events

They also raise millions every year to help people affected by MS.

 

About MS

Multiple sclerosis (MS) is a condition of the central nervous system.

In MS, the coating around nerve fibres (called myelin) is damaged, causing a range of symptoms.

More than 100,000 people in the UK have MS. Symptoms usually start in your 20s and 30s and it affects almost three times as many women as men.

To view the latest statistics, download our report on MS in the UK.

Once diagnosed, MS stays with you for life, but treatments and specialists can help you to manage the condition and its symptoms.

We don't know the cause and we haven't yet found a cure, but research is progressing fast.

What happens in MS?

To understand what happens in MS, it's useful to understand how the central nervous system works.

A substance called myelin protects the nerve fibres in the central nervous system, which helps messages travel quickly and smoothly between the brain and the rest of the body.

Exposed electrical cables - similar to exposed nerves

In MS, your immune system, which normally helps to fight off infections, mistakes myelin for a foreign body and attacks it. This damages the myelin and strips it off the nerve fibres, either partially or completely, leaving scars known as lesions or plaques.

This damage disrupts messages travelling along nerve fibres – they can slow down, become distorted, or not get through at all.

As well as myelin loss, there can also sometimes be damage to the actual nerve fibres. It is this nerve damage that causes the increase in disability that can occur over time.

MS symptoms

As the central nervous system links everything your body does, many different types of symptoms can appear in MS.

The specific symptoms that appear depend upon which part of your central nervous system is affected and the job of the damaged nerve.

MS support | Multiple Sclerosis Society UK

MS can be tough to deal with, especially when you've just been diagnosed. But you're not alone.

The MS Society can help you get

We also offer support to:

 

 

MS Society

Thank you for nominating The MS Society as your chosen charity.

All the information required for the event will be emailed to you upon registration.

Event Properties

Event Date 29-05-2016 9:30 am
Event End Date 29-05-2016 6:00 am
Registered 3
Cut off date 27-05-2016 6:00 pm
Attachment FB-Cover-The-Tour.jpg
Route Plan - 14 March 2016.pdf
Route in Middlesbrough - Sheet 1 - 14 March 2016.pdf
Route in Middlesbrough - Sheet 2 - 14 March 2016.pdf
TTOT-Logo.jpg
mssocietyfundraising.pdf
tourguide.pdf
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About

Raising money for WARD 14 at the James Cook Hospital and supporting local causes #itsallaboutward14 #teessidefamily we look after our own

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